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Dr Natasha Hirschhorn-Edwards

Dr Natasha Hirschhorn-Edwards

Project Manager

BSc (HIM) PhD

Medicine & Health
School of Population Health

As the Program and Communications Manager for the NHMRC Centre of Research Excellence in Medicine Intelligence (MI-CRE), I coordinate and communicate the research activities of our collaborative research network. Knowledge translation is key to the success of any research program, and I am passionate about utilising real-world data to generate evidence that underpins better policy and guidelines for the health of our population.

In November 2020, the MI-CRE was awarded a $2.5 million five-year grant from the NHMRC for the purpose of delivering ‘real-world’ evidence on the use and outcomes of medicines in Australia. The MI-CRE is a national collaboration of ten Chief Investigators and ten Associate Investigators from universities across Australia and is led by Professor Sallie Pearson from the School of Population Health, UNSW Medicine and Health.

In addition to my work with the MI-CRE I also work part-time at the National Perinatal Epidemiology and Statistics Unit (NPESU). The NPESU is a leading national agency of information and research in pregnancy, childbirth and the neonatal period, and is a joint unit of the School of Women’s and Children’s Health and the Centre for Big Data Research in Health, UNSW Sydney.

My research background is in maternal and perinatal epidemiology and health information management. I led the development of the world-first Maternity Care Classification System (MaCCS) for the Commonwealth Department of Health as part of the AIHW National Maternity Data Development Project. My areas of research interest include maternal and perinatal outcomes under different models of care. I have co-authored a number of national epidemiological reports, including the first Perinatal deaths in Australia report in 2016 and managed the development of the first website in Australia dedicated to reporting the success rates of IVF treatment - YourIVFSuccess.com.au. I completed my PhD in 2019 in the School of Women's and Children's Health, UNSW validating the MaCCS.

In additional to my professional responsibilities, I have been a leading consumer advocate and representative in maternal and perinatal health for almost 20 years, providing advice on state and national committees and Boards, including the Australian College of Midwives National Board and the International Vasa Previa Foundation.

Location
Room 209 Level 2, Samuels Building
  • Book Chapters | 2022
    Donnolley N; Dahlen H, 2022, 'Grief and loss during childbearing -- the crying times', in Pairman S; Tracy S; Dahlen H; Dixon L (ed.), MIDWIFERY PREPARATION FOR PRACTICE., Elsevier
    Book Chapters | 2021
    Donnolley N; Rudd L; Fitzgerald O; Davies-Tuck M, 2021, 'Working as a Health Data Scientist', in Butler-Henderson K; Day K; Gray K (ed.), The Health Information Workforce, Springer Nature, Switzerland, pp. 237 - 246,
    Book Chapters | 2019
    Crowther S; Ross-Davie M; Davis D; Donnolley N, 2019, 'Ways of Providing Midwifery Continuity of Care', in 91³ÉÈ˰涶Òôr C; Leap N; Brodie P; Sandall J (ed.), Midwifery Continuity of Care A Practical Guide, Elsevier, pp. 53 - 73
    Book Chapters | 2014
    Donnolley NR; Dahlen H, 2014, 'Grief and loss during childbearing - the crying times', in Pairman S; Pincombe J; Thorogood C; Tracy S (ed.), Midwifery: preparation for practice, Elsevier, Sydney, pp. 1203 - 1223
  • Journal articles | 2024
    Javid N; Donnolley N; Kingdom J; Dadouch R; D'Souza R, 2024, 'Women- and clinician- important outcomes and priorities regarding vasa praevia: An international qualitative study to inform development of a core outcome set', Women and Birth, 37,
    Journal articles | 2023
    Brew BK; Donnolley N; Fitzgerald O; Molloy D; Chambers GM, 2023, 'Does a public online IVF prediction tool help set patient expectations? A mixed methods evaluation study', Human Reproduction, 38, pp. 1761 - 1768,
    Journal articles | 2023
    D'Souza R; Yeretsian T; Javid N; Donnolley N; Ashraf R; Adams A; Kingdom JC, 2023, 'A core outcome set for studies on vasa previa (COVasP): an international consensus study', American Journal of Obstetrics and Gynecology, 228, pp. S385 - S385,
    Journal articles | 2022
    Austin MP; Ambrosi TL; Reilly N; Croft M; Hutchinson J; Donnolley N; Mihalopoulos C; Chatterton ML; Chambers GM; Sullivan E; Knox C; Xu F; Highet N; Morgan VA, 2022, 'Patterns of psychiatric admission in Australian pregnant and childbearing women', Social Psychiatry and Psychiatric Epidemiology, 57, pp. 611 - 621,
    Journal articles | 2022
    Brew BK; Donnolley N; Henry A; Dahlen H; Jalaludin B; Chambers GM; Haasdyk BB, 2022, 'Double jeopardy-pregnancy and birth during a catastrophic bushfire event followed by a pandemic lockdown, a natural experiment', Environmental Research, 214, pp. 113752,
    Journal articles | 2022
    Javid N; Donnolley N; Dadouch MR; Kingdom J; D'Souza R, 2022, 'Identifying outcomes for vasa praevia that are important for women: a qualitative study to inform a Core Outcome Set', Women and Birth, 35, pp. 16 - 16,
    Journal articles | 2022
    de Oliveira Costa J; Pearson SA; Donnolley N; Bailey B; Hollingworth S; Stanford T; Pratt N, 2022, 'Parity in female authorship in Australian pharmacoepidemiology research leveraging medicine dispensing data: How well are we doing?', Pharmacoepidemiology and Drug Safety, 31, pp. 1010 - 1012,
    Journal articles | 2021
    Coates D; Donnolley N; Foureur M; Henry A, 2021, 'Inter-hospital and inter-disciplinary variation in planned birth practices and readiness for change: a survey study', BMC Pregnancy and Childbirth, 21, pp. 391,
    Journal articles | 2021
    Coates D; Donnolley N; Foureur M; Henry A, 2021, 'Women's experiences of decision-making and attitudes in relation to induction of labour: A survey study', Women and Birth, 34, pp. e170 - e177,
    Journal articles | 2021
    Coates D; Donnolley N; Foureur M; Thirukumar P; Henry A, 2021, 'Factors associated with women's birth beliefs and experiences of decision-making in the context of planned birth: A survey study', Midwifery, 96, pp. 102944,
    Journal articles | 2021
    Coates D; Donnolley N; Henry A, 2021, 'The Attitudes and Beliefs of Australian Midwives and Obstetricians About Birth Options and Labor Interventions', Journal of Midwifery and Women's Health, 66, pp. 161 - 173,
    Journal articles | 2021
    Coates D; Donnolley N; Thirukumar P; Lainchbury A; Spear V; Henry A, 2021, 'Women’s Experiences of Decision-making and Beliefs in Relation to Planned Cesarean Section: A Survey Study', Obstetric Anesthesia Digest, 41, pp. 193 - 194,
    Journal articles | 2021
    Coates D; Donnolley N; Thirukumar P; Lainchbury A; Spear V; Henry A, 2021, 'Women’s experiences of decision-making and beliefs in relation to planned caesarean section: A survey study', Australian and New Zealand Journal of Obstetrics and Gynaecology, 61, pp. 106 - 115,
    Journal articles | 2021
    Dominiek C; Amanda H; Georgina C; Repon P; Angela M; Teena C; Donnolley N; Henry A; Paul R; Chambers G, 2021, 'Exploring variation in the performance of planned birth: A mixed method study', Midwifery, 98, pp. 102988,
    Journal articles | 2021
    Dominiek C; Natasha D; Foureur M; Spear V; Amanda H; Henry A; Hirschhorn-Edwards N, 2021, 'Exploring unwarranted clinical variation: The attitudes of midwives and obstetric medical staff regarding induction of labour and planned caesarean section', Women and Birth, 34, pp. 352 - 361,
    Journal articles | 2021
    Pratt N; Camacho X; Vajdic C; Degenhardt L; Laba TL; Hillen J; Etherton-Beer C; Preen D; Jorm L; Donnolley N; Havard A; Pearson SA, 2021, 'The Medicines Intelligence Centre of Research Excellence: Co-creating real-world evidence to support the evidentiary needs of Australian regulators and payers', International Journal of Population Data Science, 6,
    Journal articles | 2020
    Andrews CJ; Ellwood D; Middleton PF; 91³ÉÈ˰涶Òôr CSE; Reinebrant HE; Donnolley N; Boyle FM; Gordon A; Nicholl M; Morris J; Gardener G; Davies-Tuck M; Wallace EM; Flenady VJ, 2020, 'Survey of Australian maternity hospitals to inform development and implementation of a stillbirth prevention ‘bundle of care’', Women and Birth, 33, pp. 251 - 258,
    Journal articles | 2020
    D'Souza R; Villani L; Hall C; Seyoum M; Kingdom J; Krznaric M; Donnolley N; Javid N, 2020, 'Core outcome set for studies on pregnant women with vasa previa (COVasP): A study protocol', BMJ Open, 10, pp. e034018,
    Journal articles | 2019
    Botha W; Donnolley N; Shanahan M; Norman RJ; Chambers GM, 2019, 'Societal preferences for fertility treatment in Australia: a stated preference discrete choice experiment', Journal of Medical Economics, 22, pp. 95 - 107,
    Journal articles | 2019
    Donnolley N; Chambers G; Butler-Henderson K; Chapman M; Sullivan E, 2019, 'A validation study of the Australian Maternity Care Classification System', Women and Birth,
    Journal articles | 2019
    Hilder L; Flenady V; Ellwood D; Donnolley N; Chambers GM, 2019, 'Improving, But Could Do Better: Trends in Gestation-Specific Stillbirth in Australia, 1994-2015', Obstetrical and Gynecological Survey, 74, pp. 255 - 256,
    Journal articles | 2018
    Botha W; Donnolley N; Shanahan M; Chambers GM, 2018, 'Assessment of the societal and individual preferences for fertility treatment in Australia: Study protocol for stated preference discrete choice experiments', BMJ Open, 8, pp. e020509,
    Journal articles | 2018
    Hilder L; Flenady V; Ellwood D; Donnolley N; Chambers G, 2018, 'Improving, but could do better: Trends in gestation-specific stillbirth in Australia, 1994-2015.', Paediatric and Perinatal Epidemiology,
    Journal articles | 2017
    Donnolley NR; Chambers GM; Butler-Henderson KA; Chapman MG; Sullivan EA, 2017, 'More than a name: Heterogeneity in characteristics of models of maternity care reported from the Australian Maternity Care Classification System validation study', Women and Birth, 30, pp. 332 - 341,
    Journal articles | 2016
    Donnolley N; Butler-Henderson K; Chapman M; Sullivan E, 2016, 'The development of a classification system for maternity models of care', Health Information Management Journal, 45, pp. 64 - 70,
    Journal articles | 2013
    Donnolley N; Halliday LE; Oyelese Y; Hirschhorn-Edwards N, 2013, 'Vasa Praevia: a descriptive review of existing literature and the evolving role of ultrasound in prenatal screening', Australasian Journal of Ultrasound in Medicine (AJUM), 16, pp. 71 - 76,
  • Preprints | 2024
    Zoega H; Falster M; Gillies M; Litchfield M; Camacho X; Bruno C; Daniels B; Donnolley N; Havard A; Schaffer A; Chambers G; Degenhardt L; Dobbins T; Gisev N; Ivers R; Jorm L; Liu B; Vajdic C; Pearson S-A, 2024, The Medicines Intelligence Data Platform: A population-based data resource from New South Wales, Australia, ,
    Conference Posters | 2023
    D'Souza R; Yeretsian T; Javid N; Donnolley N; Ashraf R; Adams A; Kingdom JC, 2023, 'A core outcome set for studies on vasa previa (COVasP): an international consensus study', Vol. 228, pp. S385 - S385,
    Conference Presentations | 2021
    Donnolley N; Paul R; 91³ÉÈ˰涶Òôr C; Nicholl M; Chambers G, 2021, 'The ‘Raising the B@RR Study’ - Using the MaCCS and ICHOM Pregnancy and Childbirth Standards to evaluate maternal and perinatal outcomes.', presented at 2021 Australian College of Midwives Virtual National Conference, 13 October 2021 - 14 October 2021
    Theses / Dissertations | 2019
    Donnolley N, 2019, A validation study of the Maternity Care Classification System (MaCCS), UNSW Sydney
    Conference Papers | 2017
    Donnolley N; Chambers G; Butler-Henderson K; Chapman M; Sullivan E, 2017, 'The Maternity Care Classification System - A validated system for classifying models of care', in WOMEN AND BIRTH, ELSEVIER SCIENCE BV, pp. 11 - 11,
    Conference Presentations | 2016
    Donnolley NR; Chambers GM; Chapman M; Butler-Henderson K; Sullivan E, 2016, 'The Maternity Care Classification System: a more accurate way of defining models of care than by name alone', presented at International Normal Labour and Birth Conference, Sydney, 11 October 2016 - 13 October 2016
    Reports | 2016
    Monk A; Harris K; Donnolley NR; Hilder L; Humphrey M; Gordon A; Chambers G, 2016, Perinatal deaths in Australia, 1993-2012, AIHW, Canberra, Perinatal deaths series no. 1. Cat. no. PER 86,
    Conference Abstracts | 2015
    Donnolley N; Chapman M; Sullivan E; Butler-Henderson K, 2015, 'Variations in models of care in NSW - Results from the MaCCS validation study making a difference to women', in WOMEN AND BIRTH, ELSEVIER SCIENCE BV, Vol. 28, pp. S13 - S13,
    Conference Presentations | 2015
    Donnolley NR; Chapman M; Sullivan EA; Butler-Henderson K, 2015, 'Variations in models of care in NSW – Results from the MaCCS validation study making a difference to women', presented at Super Midwives - Making a Difference, Australian College of Midwives, 19th Biennial Conference, Gold Coast, 05 October 2015 - 08 October 2015,
    Conference Papers | 2014
    Donnolley NR; Butler-Henderson K; Sullivan E, 2014, 'A road freshly paved: the development and validation of a classification system for maternity models of care.', Darwin, presented at 31st Annual HIMAA and NCCH National Conference, Darwin, 07 October 2014 - 09 October 2014,
    Conference Posters | 2014
    Donnolley NR; Horey D; Flenady V; Sullivan E, 2014, 'Engaging consumers as partners in perinatal research - the future is consumer-focussed', Perth, WA, Australia, presented at PSANZ 18th Annual Conference 2014, Perth, WA, Australia, 06 April 2014 - 10 April 2014
    Reports | 2014
    Donnolley NR; Sullivan EA; Hilder L, 2014, Nomenclature for models of maternity care: literature review, July 2012 - Foundations for enhanced maternity data collection and reporting in Australia: National Maternity Data Development Project Stage 1, AIHW, Canberra, Cat. no. PER 62
    Conference Posters | 2013
    Donnolley NR; Hilder L, 2013, 'The Development of the National Maternity Information Matrix', Adelaide, SA, Australia, presented at 17th Congress of the Perinatal Society of Australia and New Zealand (PSANZ), Adelaide, SA, Australia, 01 April 2013 - 05 April 2013,
    Conference Papers | 2013
    Donnolley NR, 2013, 'Developing a nomenclature for maternity models of care in Australia', in Women and Birth, Elsevier, Hobart, Tas, Australia, presented at Australian College of Midwives 18th Biennial Conference 2013: Life, Art & Science in Midwifery, Hobart, Tas, Australia, 01 October 2013 - 04 October 2013,
    Reports | 2012
    Donnolley NR; Li Z, 2012, Perinatal National Minimum Data Set compliance evaluation 2006 to 2009, AIHW National Perinatal Epidemiology and Statistics Unit, Sydney, Perinatal statistics series no. 26. Cat. no. PER 54,